Friday, April 23, 2010

Brothers health might stretch my support thin...

After a few hours of sleep I'm wide awake and worrying in the wee hours of the morning.   My husband and I spent the past week at my Mom's house with my brother who's 18 years older than me.  He's living at her home now, paying all the household bills and tending to the lawn, etc.  It's beneficial for Mom and also for him.  I don't care for some of the things he does and sometimes I don't care much for him but this morning, I'm really worried about him.  He seems different and weak and vulnerable.  I am afraid something is wrong and that some day, I'll have to tell my Mom that her son is seriously ill.  What's worse than learning that your child is ill or dieing?  It will be tough for us all.

I can't help but think about my brother and feel for him - just WHAT I feel is what's keeping me awake.  My brother is not what I'd call a nice guy - at least not to those in his family.  He's been kind, generous and even loving to friends and even total strangers.  To us he's most often mean and impatient. He speaks with NO regard to people's feelings and drinks WAY too much which makes his attitude even more rude and crude. Yet....no matter how much of a jerk he is, when any of us - parents, siblings, cousins, nieces or nephews - has really needed something or someone, he's come through.   For all his hurtful crap, he's as dependable as the morning; sometimes that's a cold, grey morning but it's still morning.  His attitudes indicate he doesn't like people, wants nothing to do with them or with us, yet lately he's showing some tenderness here and there that makes me reconsider what's really important.  His tendency to push everyone way might just mean that he needs some support all the more right now.   I won't do it because I care deeply for him or because he's been loving to me but I'll do it for myself.  It's selfish I suppose but I couldn't feel good about myself if I left him feeling that no one gave a damn.  I feel I owe him something, although I consider all "debts", both figurative and literal, well paid in full.   I just can't let him be completely alone and without a soul to care.  My husband and I fear that fate someday - no children and nieces and nephews scattered and busy with their own lives, who'll give a damn about us?  We'll have to be secure knowing that someone REALLY, REALLY loved us and cared dearly one point  in our lives even if one of us ends up alone. My brother doesn't have that to comfort him so I'll do what I can and feel good that I was able to show kindness to someone who could not show it to his family.  Some people might call me a martyr for that attitude but let them.   They don't have to live with ME.  I have to live with me, I have to look myself in the mirror everyday and I'd see something really bad if I weren't there for him.

Thursday, April 22, 2010

Mom's adjusting better at nursing home than assisted living

Mom's been at the nursing home for 2 1/2 months now and she seems to be adjusting better to it than she did to assisted living.   It's a combination of things - she has friendly tablemates that do not suffer from dementia; she's more likely to ask for help and used to it by now, and she likes the food and view at this nursing home much better than the assisted living facility.  It's amazing what  we might call minor changes will do.   Another BIG difference is that she's sharing a room.   She seems to do better when there's someone else around her all the time. They share a soda each afternoon and some chocolates each evening.  Mom also has empathy for her roommates condition and wants to help make her feel better.

Mom's also getting around better in her wheelchair with a new pad that prevents her from slipping down in the chair.  She's able to pull herself along with her feet and uses her hands to guide the wheelchair easily.   She's also starting to make jokes and pranks with other residents - which lifts her spirits.  On Monday an older gentleman got ahold of her wheelchair and pulled her down the hall to the dining room after she'd worked her way to her room.  She said he laughed the whole way.   So today, she quietly rolled up behind him and got a hold of a strap on his wheel chair, she put on her breaks and held onto the strap.  When the guy tried to move he was stuck; his feet just slid on the floor.   He was not able to turn around far enough to see what was holding him back so he just kept "running in place".   She let him go after 20 minutes or so!   I hope she doesn't get in trouble for harassment!!  It's all in good fun.

How can I help Mom adjust to her nursing home?

Wednesday, April 21, 2010

Medicaide should help but for a few months will put Mom's accounts in the hole!!

Mom just began getting Medicaide to supplement her rent for a nursing home and for a few months she won't have enough to cover all of her expenses.  I'll have to chip in about $100 a month.   Mom must pay nearly all of her income (social security and pension) to the nursing home.  She gets $30 for her personal needs and $200 for her supplemental insurance premium.   The deficit happens because Medicaide considers ALL of her social security - the grose amount BEFORE deduction of premiums for Medicare part B.   Medicaide is supposed to pay the premiums now but it takes a while for the Federal government to get the message and stop the withdrawals.   So for a few months Mom is required to pay out what she doesn't get.    I spoke with Medicaide and they said she will get reimbursed for the Medicare part B premiums but it could take 3-5 months until it's all said and done.   So, I'll make regular deposits in Mom's account and continue to make calls if it doesn't happen by July.  
Medicaide wants more than Mom dad gets Medicare premiums are still withdrawn medicare premiums put mom dad in the hole medicare premiums cause over drafts over drawn

Tuesday, April 20, 2010

"Everyday" medications may be source of confusion in the elderly

I suffer from allergies and fear what my future elder years will be like.   The more I read about eldercare, aging and drugs the more anxiety I feel.   Though I have yet to find data from large clinical trials, I read small articles and abstracts that list medications - everyday basic meds used by daily by MILLIONS - that cause confusion and memory loss in the elderly.    Loratadine is one example.  I take two of these daily for allergies.  It is the ONLY thing that keeps me from getting sinus pain and pressure that turn into dibilitating migraine headaches.  These articles indicate that even benedryl - which will cause sleepiness - causes confusion and memory loss.  

I can see where care givers and doctors would believe that confusion and forgetfullness are simply part of the aging process. They might continue to give these medications to keep the patient comfortable and treat these chronic conditions without realizing the cognitive impacts to the elder.   Additionally, I wonder about the long term effect of using these drugs for years and years.   I hope I don't have to make a choice between being able to function now and retaining my wits in 30 years!!  I'll keep researching and will report back as I learn more.

If you want to learn more or find helpful information, try these links for some basic information:

Consumer Reports: http://www.consumerreports.org/health/prescription-drugs/dangerous-drugs-for-older-people/overview/dangerous-drugs-for-older-people.htm
Food and Drug Administration, Drug information for consumers
www.fda.gov/cder/consumerinfo/DPAdefault.htm

The Peoples Pharmacy online:  http://www.peoplespharmacy.com/ and look at their GUIDES link for more information on the drugs that cause problems and treatments that might help.