Thursday, December 10, 2009

Caregiver study makes me say "Well, NO SH__!"

Listening to the radio the other day I heard a news article about a study that "revealed" (heavy dramatic sarcasm intended) that 30% of American's are acting as care givers for a family member.  The study of 2000 caregivers, called Caregiving in the US 2009, was conducted by the AARP with funding from the MetLife Foundation.    It revealed that care giving is - now I'm quoting Elinor Ginzler of the AARP here - "essentially a half time job."  Well NO SH__T!

The article further states: Many of the results of the survey are similar to those from earlier versions in 2004 and 1999. Two-thirds of caregivers are women. The average age is about 48. Almost all--86 percent--care for a relative. Most often, 36 percent of the time, it's for a parent. On average, caregivers have been providing care for 4.6 years, and three in ten report doing so for five years or more.

Ginzler says one of the biggest changes to show up in the survey this year is just how much caregiving can interfere with regular work. "Making accommodations in the workplace has increased in several ways," she says. "In most cases, two thirds of them, means they either go in late, leave early or take time off."

Again, all I can say is WELL NO SH__T!!  And I DO mean the SH__ word because I'm disgusted with studies like this and no other word expresses my disgust better than that.   Growing up it seemed that everyone I knew was involved in helping an elderly parent, grand parent, relative or neighbor.  It's just what you DID - it's what you DO because it's the RIGHT thing to do.  Why do we need studies to prove it?  Don't these decision makers look around at their own families and those of their employees?

I'm sure this study is well intended.  I know that the AARP and MetLife want to track trends, but if you got the same results in 1999 and 2004 - please DO SOMETHING PRACTICAL TO HELP!   Here are a few ideas:
  • Give them half or full pay for hours worked on programs to repair homes of elderly residents or to install ramps, tubs, counters, - any repair or remodel that helps people age in place.
  • Encourage employers to look at the WHOLE value of an employee and NOT penalize them with lower wages for flex time. 
  • Pay for respite care so your care-giving employees can have a day off away from work AND family responsibilities
  • Give tax credits to people who work to keep their parents OUT of nursing homes, the requirement to provide 50% of their support is too high too meet given social security and pension incomes
  • Sponsor care giver clinics to help people understand the legal issues that might come up when helping elderly parents and to identify what type of help is available to their parent/relative/neighbor
I spent the better part of my 30's returning to northern Idaho to help my own parents and I'm paying for it now in lower retirement savings.   I took jobs that permitted some flexibility so that I could travel often. It meant that, while my overall contribution to my employer was great, I got paid less, got a lot of the "crap work" and wasn't considered for promotions because I needed the flexibility.   I was in a bad spot and, more than once, my employer took advantage of it.   I've also had a couple of GREAT and supportive employers, I'll cover that instance in my next post but for the most part, mine and friend's experiences have been bad.

As our representatives in the US House and Senate fight over health care, I hope that they will be wise enough to look at the WHOLE picture and give some relief to those of us who just do the right thing.  I hope they would encourage companies to do things like this rather than listen to the insurance industry hacks who are worried about enrolling young, healthy people at the highest rate possible.   Most of us work for other people on their schedules.  In between those work hours, we raise kids, we clean, we cook, we help our families and each other.  We deserve a break!

To find the radio segment or read the article follow this link to National Public Radio (NPR):    

A hard talk with ALF Director and I still don't feel better

I discussed the "plunger incident" with the ALF Director on Monday afternoon and I didn't feel much better afterward. Though she was nice, I don't feel the matter will generate the attention and actions I think it deserves.   Apparently she got a call Friday evening and the staff discussed it that morning in their "stand up" meeting - I guess that means they all stand around and relay news.

I wanted to hear that she'd taken some more proactive approach to investigating this and then making a plan for prevention.  First,  she wanted me to relay exactly WHAT happened so I did in great detail.  I told her that I suspect the plunger full of poo had been sitting in the corning since morning because Mom said she smelled something earlier in the day.  The Director said basically said you're not SURE it was there all day?   That didn't make me happy... I finally said, I don't care WHEN it was used, I care that it was left in the corner full of poo and it's unhealthy and unsafe.   I care that my mom's room smelled like a fetid sewer for hours and no one investigated!

After 10 minutes I was not getting any idea of what she planned to do so I directly said: Look, I'm a "fixer", that's how I've made my living so here's what I want to see from you:
  • identify the aides that worked that day, if you can't identify the specific aide, talk with them ALL
  • train them on how to properly USE and CLEAN a plunger after it's been used
  • train them on the proper way to empty a commode and do it in two flushes
  • get different plungers that don't have so many surfaces for stuff to hide
I WANT to believe that she planned to do something like this but I want to hear it from her - I want to see PROACTIVE measures to prevent stuff like this. It seems totally absurd to me that I have to tell her this.  I HOPE that she planned to do this anyway and she just didn't feel comfortable laying it out for me or perhaps she thought I'd feel better if she just left me vent.   If that's the case - she's patronizing me and I don't like that either.  I'm not paying for patronizing, I'm paying for decent and dignified care for my mom and I'm not seeing it.

I ended the conversation by saying that I believe she WANTS mom to get good care but things like this are a risk.  If something EVEN CLOSE to this happens again, I'm calling the state to report it. Dealing with the "inputs and outputs" - food and poo - are the most basic necessities we have whether we're dealing with babies or elderly parents so I'd hope they'd have techniques and processes to deal with all kinds of scenarios.